'Banished to this cave, Father Time must listen to the world's every plea - for more minutes, more hours, more years, more time'
Mitch Albom, The Time Keeper
Time is precious. Families battling Duchenne are acutely aware of time, and their lack of it. Duchenne Muscular Dystrophy currently affects 2500 children in the UK. Children with Duchenne are unable to produce dystrophin, an essential component in muscle growth. As a result, their muscles waste away one at a time. Children with Duchenne are typically wheelchair bound at the age of 12 and can suffer respiratory failure, heart failure, and other debilitating orthopaedic complications.
Duchenne is a ticking time bomb. It is 100% fatal. There is no cure.
But there is hope. Harrison’s Fund has one goal - 'to get as much money as possible into the hands of the world's best researchers, who are working to find a cure for Duchenne. New advances in gene therapy and molecular medicine are being made and it is clear we are on the cusp of a major breakthrough'.
Harrison's Brunch is an annual event held to raise funds and awareness of Duchenne. The charity asks you to take time out for food, friends and family this June and raise money for Harrison's Fund. The money raised through Harrison’s Brunch this year will go to fund the clinical trial of pioneering new drug Carmaseal, which could be vital in the battle against Duchenne.
Fortycubed for Harrison
When I was narrowing down the list of charities to include on the Fortycubed list my good friend Claire was undergoing chemotherapy for Breast Cancer. I asked which charity she would like me to support in her honour and I had wrongly assumed it would be a cancer related charity. She has a friend living in Australia whose son has Duchenne. Claire identified Harrison's Fund as a UK based charity fundraising for research and raising awareness of Duchenne. She hosted a table at the fundraising dinner in October and so far we have raised £340 for Harrison's Fund but we want to raise more!
Please get in touch if you are able to host a fundraising brunch in June or at any other time of the year! #maketime